So, my friend Matt is doing work for a charity and I figured I'd help him out. I'm going to copy/paste what he's spreading around, and I'm hoping that even if this doesn't bring in the donations, it might at least help spread the word around so others can spread the word.
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So this is something very personal to me and I feel the need to share it. Today I'm writing about three fantastic boys. Archie, George, and Isaac. They are incredibly adorable and they can light up a room with smiles just by their presence alone. Archie is a man of 1000 questions and will not hesitate to ask them all at once. George and Isaac, the twins, on the other hand would rather trap you in a room and refuse to let you out until you give them money (this happened to me yesterday lol).
These three amazing children are going to die.
All 3 brothers suffer from a disease known as Duchenne Muscular Dystrophy. It is a genetic disease that currently has a 100% fatality rate. When a child is diagnosed with his disease it means that their muscles do not produce a certain protein that is used for them to function properly. As a result the muscles in their bodies will slowly begin to shut down. Usually around age 10 they are no longer able to walk. A few years later they lose the ability to use their arms and before long they are paralyzed from the neck down. They'll be hooked up to machines to help them breathe but before long, usually before the age of 20, the most important muscle in the human body: the heart, stops working.
There is no cure. There is no treatment. Every day the parents of these children wake up and go upstairs uncertain that their children will still be alive. A heart attack can happen at any time because of this disease.
Join Our Boys is a Charitable Trust that has been set up to fund research to people who are 99% certain that they hold the key to unlocking and curing this disease. However governments and other bodies are not providing the funds for this research. Join Our Boys was created in Roscommon, Ireland where the reaction has been utterly breathtaking. Back on May 1st, the twins birthday, the entire town was turned Orange (all 3 of the boy's favorite color) and there was a massive concert including local acts and Jedward (if you don't know who they are, look them up). At one point #joinourboys was the #2 trend on Twitter WORLDWIDE.
One of the other goals of the trust is to build a house that is designed for families with children who are suffering from DMD. The house is estimated to cost €1.2 Million and so far over €450,000 has been raised in support of this family and all other families that are battling this monster of a disease.
Last night, July 19th, Paula and Padraic were on a National Irish TV show called Saturday Night with Miriam where they were able to tell their story to the entire country of Ireland. But that won't be enough. This needs to go global and I know that the internet is the fastest way to do this.
I'm not going to beg for donations or anything I would just really appreciate if everyone could use social media and just spread the word about this horrible illness and this tragic story.
Learn more about these kids and the horrible disease they have at www.joinourboys.org (http://joinourboys.org/)
"Like" The Facebook Page (https://www.facebook.com/Joinourboys?ref_type=bookmark)
"Like" The Facebook Events Page (https://www.facebook.com/joinourboyseventsinfo?ref_type=bookmark)(Fundraising Events are possible to happen around the world!)
Follow the Twitter Account (https://twitter.com/joinourboys)
Follow the Instagram Account (http://instagram.com/joinourboys)
I'll end this with the tagline that Paula uses for all of her JOB posts
Keep Moving
Keep Marching
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A 30 minute interview with the Parents of the children
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Like I said, even if you guys can't actually donate, hopefully we can spread the word. I really want to help him out as much as I can and hey, maybe it's a good chance to prove that libertarians care about charity.
I'm afraid money is in short supply at this time (thanks mom...), but I'll do all that I can. My friends are good people, and I hope a few can help with donations, so I shared the pictures, so that others can see it.
Quote from: Ibrahim90 on July 22, 2014, 02:41:52 AM
I'm afraid money is in short supply at this time (thanks mom...), but I'll do all that I can. My friends are good people, and I hope a few can help with donations, so I shared the pictures, so that others can see it.
That's fine. I understand times are tough for everyone, so even just spreading the pictures and links around will help just as much as donations will.